From Simone general writing

Hospice Annual talk – Simone

  I had the privilege of speaking at the annual Hospice events in Grahamstown and Kenton this weekend. It was completely daunting but also great to be able to connect with people and hopefully make a difference in some way. Below is a clip of the slideshow I put together that goes with the talk as well as the talk itself in video form with the text below.   It is both an extreme privilege and an incredibly daunting task to stand up here and talk to you today. I look out and see so many faces that I recognise,…

My WTF moment – by Simone

On this journey of grief, you are thrown curve balls along the way that leave you speechless. I had one of those yesterday. I have written on here about my social anxiety, especially when it comes to social situations where I know I will be surrounded by people that I don’t know well and who may not know our story – where I have to manage peoples reactions and discomfort and how they generally have no idea what to “do” with me. I did some lifting yesterday for a school outing of Murray’s where some other moms were also helping…

Re-wiring the brain – anxious reactions – by Simone

Since my recent miscarriage and all the trauma that came along with that, as well as my recent surgery where I nearly died, my PTSD has definitely got worse again, and along with this my social anxiety. I struggled with PTSD after Bella died, with extreme flashbacks multiple time per day, and then after losing Thomas they got even worse. I finally went on medication to help me cope with them better and also did some serious work with my psychologist. The PTSD and flashbacks got a lot better, but they have definitely reared their ugly head again.   I…

Could I be cursed? – by Simone

Could I be cursed? It’s honestly beginning to feel that way! I must have been a very very bad person in my previous life! So after I wrote about having a good cancer check up and bloods, I went for my annual CT scan just as a routine additional check. The next day I was sitting in the SAA lounge about to fly to Johannesburg when I received a call from my dear plastic surgeon to tell me that they had found a growth in my uterus 10cm x 9cm. I was completely calm and carried on my day as…

Celebrating a good cancer check up – by Simone

I had my 6 monthly cancer check this afternoon with my oncologist and plastic surgeon. I had been quite worried about it to be honest. I was pretty convinced that my cancer markers would have gone up again. With everything that my body has been through over the last few months, I honestly never assumed it would be any different. My body has been tested almost more than it was able to deal with and I know that that is when issues in your body, like cancer, are often exposed. But my tumour marker has stayed nicely low and they…

Tonight is a tough night – by Simone

Tonight is one of those nights where everything suddenly seems to catch up with me. I am STILL in hospital with one damn complication after another. I was initially admitted back into hospital on Wednesday morning to give me some fluids, see if I needed a blood transfusion and it was expected I would be out in 24 hours. Instead, I started having massive spiking temperatures and it seemed that I have an infection/s and that surgery was on the cards for today (this was always a last resort for Steffi). The blood cultures came back today showing that I…

Our 4th pregnancy, precious but too short… – by Simone

It’s hard to know where to start with this next chapter of our lives. A much shorter chapter than we would have liked but important nonetheless. I guess the summary is, I was pregnant, carried until 10weeks and 5 days and then had a miscarriage. But as with our family, it’s never as simple as that, is it?! For those who have been following our blog, you will know that we have desperately been trying to have another baby. I had 9 operations last year, some to try and fix my uterus, some to retrieve some very precious eggs for…

James and Alcohol – by Simone

As I was driving to work this morning, on Valentine’s Day, I was thinking about my darling husband, how much I love him and how grateful I am for him. I thought back over our last few years and how much we have been challenged, and how strong he has been in facing a particular challenge of his. Some of you may not know this but my husband stopped drinking almost 4 years ago. Prior to this he was an “over-indulger”. It wasn’t that he drank every day. Not at all. But rather that when he drank in a social…

My Lymph Node Transplant – by Simone

This blog started off as a medium to be able to help us cope with the loss of our children, and in that way, also reach out to others and help them cope with their loss in any way that we could. Over time, this has morphed into a bit of a diary about our/my life – covering the death of children, our journey with grief, life’s disappointments, cancer scares, IVF and so much more. And more often than not the honest way in which we share here is pretty scary. Because putting your stuff out there is scary, being…

Sometimes its just plain Sh!t… – by Simone

Today is one of those days. Just a complete emotional all-fall-down day. In fact the last few days have been tougher than normal. And today its 2 years and 1 month since our darling Bella left us.   Sometimes you know exactly where these real emotional lows come from, and other times they just hit you from out of nowhere. I know exactly why I am feeling the way I am feeling but the extent of how and what I am feeling has taken even me by surprise. More recently I have been doing well I think – well relatively…